<?xml version='1.0' encoding='UTF-8'?><?xml-stylesheet href="http://www.blogger.com/styles/atom.css" type="text/css"?><feed xmlns='http://www.w3.org/2005/Atom' xmlns:openSearch='http://a9.com/-/spec/opensearchrss/1.0/' xmlns:georss='http://www.georss.org/georss' xmlns:gd='http://schemas.google.com/g/2005' xmlns:thr='http://purl.org/syndication/thread/1.0'><id>tag:blogger.com,1999:blog-1682812325692043191</id><updated>2011-07-07T18:35:34.172-07:00</updated><category term='Welcome'/><title type='text'>Lyme Disease Epidemic</title><subtitle type='html'>Greg's own story of his battle with Lyme Disease.</subtitle><link rel='http://schemas.google.com/g/2005#feed' type='application/atom+xml' href='http://lymeepidemic.blogspot.com/feeds/posts/default'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default?max-results=100'/><link rel='alternate' type='text/html' href='http://lymeepidemic.blogspot.com/'/><link rel='hub' href='http://pubsubhubbub.appspot.com/'/><author><name>Greg</name><uri>http://www.blogger.com/profile/04810923151486436631</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='21' src='http://3.bp.blogspot.com/_i8dTyVzW4fQ/SsGIU3goXzI/AAAAAAAAAAM/LXXwyFKnFw8/S220/BlogPic'/></author><generator version='7.00' uri='http://www.blogger.com'>Blogger</generator><openSearch:totalResults>13</openSearch:totalResults><openSearch:startIndex>1</openSearch:startIndex><openSearch:itemsPerPage>100</openSearch:itemsPerPage><entry><id>tag:blogger.com,1999:blog-1682812325692043191.post-2329845093242558194</id><published>2010-08-02T17:01:00.000-07:00</published><updated>2010-08-02T17:01:57.537-07:00</updated><title type='text'>The Passing of Dr. William Hitt</title><content type='html'>It is with great saddness that I was informed today that Dr. William Hitt of the William Hitt Center Clinic passed away from a sudden illness.&amp;nbsp; Not only is this terrible news to his family and loved ones, but to his patients as well.&amp;nbsp; If you were still deciding on whether or not to see Dr. Hitt for Ozone Therapy for Lyme Diesease, it may be too late.&lt;br /&gt;&lt;br /&gt;Dr. Hitt was a wonderful and carring physician.&amp;nbsp; He was on the cutting edge of treatment for&amp;nbsp;many hard-to-treat diseases, including Lyme Disease.&amp;nbsp; While he has successfully treated many Lyme patients, they still rely on his ozone therapy a few times&amp;nbsp;a year to keep it under control.&amp;nbsp; What will happen to the clinic now remains very uncertain.&amp;nbsp; For those still interested, I was told that you can contact the clinic for further updates.&amp;nbsp; &lt;a href="http://www.williamhittcenter.com/"&gt;http://www.williamhittcenter.com/&lt;/a&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1682812325692043191-2329845093242558194?l=lymeepidemic.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://lymeepidemic.blogspot.com/feeds/2329845093242558194/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://lymeepidemic.blogspot.com/2010/08/passing-of-dr-william-hitt.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/2329845093242558194'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/2329845093242558194'/><link rel='alternate' type='text/html' href='http://lymeepidemic.blogspot.com/2010/08/passing-of-dr-william-hitt.html' title='The Passing of Dr. William Hitt'/><author><name>Greg</name><uri>http://www.blogger.com/profile/04810923151486436631</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='21' src='http://3.bp.blogspot.com/_i8dTyVzW4fQ/SsGIU3goXzI/AAAAAAAAAAM/LXXwyFKnFw8/S220/BlogPic'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1682812325692043191.post-8466157152853035942</id><published>2010-06-28T12:59:00.000-07:00</published><updated>2010-06-28T12:59:19.834-07:00</updated><title type='text'>Blog Shutting Down:</title><content type='html'>I will be shutting down this blog&amp;nbsp;within the week - if you have any questions, just email me them&amp;nbsp;or leave a comment in the next week.&amp;nbsp; Thank you.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1682812325692043191-8466157152853035942?l=lymeepidemic.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://lymeepidemic.blogspot.com/feeds/8466157152853035942/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://lymeepidemic.blogspot.com/2010/06/blog-shutting-down.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/8466157152853035942'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/8466157152853035942'/><link rel='alternate' type='text/html' href='http://lymeepidemic.blogspot.com/2010/06/blog-shutting-down.html' title='Blog Shutting Down:'/><author><name>Greg</name><uri>http://www.blogger.com/profile/04810923151486436631</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='21' src='http://3.bp.blogspot.com/_i8dTyVzW4fQ/SsGIU3goXzI/AAAAAAAAAAM/LXXwyFKnFw8/S220/BlogPic'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1682812325692043191.post-6961089297297190452</id><published>2010-06-25T13:58:00.001-07:00</published><updated>2010-06-25T13:58:50.164-07:00</updated><title type='text'>FAQ's</title><content type='html'>The costs can really vary based on what treatments you choose. My best advice is to contact them directly, decide on a treatment plan and ask them for a price. They did give me a discount, because I asked for one, and I was extremely financially challenged as you are. I can't give you an exact price since everyone is different, but you should expect a minimum of $4-6,000 over time, but it could be a bit more. Driving everyday from South Orange County is feasible, but you'll be tired. If you contact the clinic directly, they will give you all the details. You can park at the border and walk across. Get a passport if you don't have one already. It does take a committment because it is all very time consuming. It's NOT something you just do for a few days or a week. If you really have Lyme and have been ill for a long time, it will take time to get well. I wish you the best of luck and that you recover!&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1682812325692043191-6961089297297190452?l=lymeepidemic.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://lymeepidemic.blogspot.com/feeds/6961089297297190452/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://lymeepidemic.blogspot.com/2010/06/faqs.html#comment-form' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/6961089297297190452'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/6961089297297190452'/><link rel='alternate' type='text/html' href='http://lymeepidemic.blogspot.com/2010/06/faqs.html' title='FAQ&apos;s'/><author><name>Greg</name><uri>http://www.blogger.com/profile/04810923151486436631</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='21' src='http://3.bp.blogspot.com/_i8dTyVzW4fQ/SsGIU3goXzI/AAAAAAAAAAM/LXXwyFKnFw8/S220/BlogPic'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1682812325692043191.post-6947996330579359542</id><published>2010-04-24T17:24:00.000-07:00</published><updated>2010-04-25T16:53:39.401-07:00</updated><title type='text'>Specific Lyme Disease Treatment Information!  Ozone Treatment for Lyme Disease.</title><content type='html'>Hi,&lt;br /&gt;&lt;br /&gt;It's now late-April 2010, nearly 2 months after I finished my treatment and I have been asked by numerous readers to give more specific details on my treatment.&amp;nbsp; I would be happy to do that with the caveat that this is just my experience and I am not trying to dictate what others should do in regards to their treatment.&amp;nbsp; Nor do I have any ties to any specific treatment or clinics.&amp;nbsp; However, that being said, I hope you will understand as you have read, the grave nature of my illness over the past 2+ years and how this treatment saved my life.&amp;nbsp; Here goes:&lt;br /&gt;&lt;br /&gt;The clinic I went to is the William Hitt Center just across the San Diego, California / Mexican border in Tijuana, Mexico.&amp;nbsp; See &lt;a href="http://www.williamhittcenter.com/"&gt;http://www.williamhittcenter.com/&lt;/a&gt;&amp;nbsp; The information below is strictly what I experienced and for educational purposes only.&amp;nbsp; Ultimately, readers will have to make their own educated decisions on treatment options for Lyme Disease.&amp;nbsp; But chances are, if you are following this blog, you are interested in learning more about Lyme Disease and newer, more&amp;nbsp;realistic treatment options.&lt;br /&gt;&lt;br /&gt;My protocol consisted of daily IV (intravenous) Ozone treatments. The treatments were very quick, only about 20 minutes or so.&amp;nbsp; Ozone is O3, which kills bacteria and viruses.&amp;nbsp; The purpose of doing it IV is to reach all parts of the body through the bloodstream that the Lyme is residing.&amp;nbsp; According to Dr. Hitt, other methods of Ozone do not work for Lyme, despite what is on the Internet.&amp;nbsp; I also had some nutritional IV's as well.&amp;nbsp; The last week of my treatment I had 6 days of IV Amino Acid Therapy.&amp;nbsp; Dr. Hitt pioneered this treatment decades ago.&amp;nbsp; It heals the neurotransmitters in the brain, which in my case were damaged by the Lyme Disease resulting in memory loss and cognitive function loss.&amp;nbsp; Countless patients I spoke with at the clinic swore by the IV Amino Acid therapy as do some more of his famous clients.&amp;nbsp; People traveled all over the world to do this treatment, which really surprised me.&amp;nbsp; But after I received the treatment, I knew why they traveled so far!&lt;br /&gt;&lt;br /&gt;I had the pleasure of speaking&amp;nbsp;with several Lyme patients at the clinic while I was there.&amp;nbsp; Dr. Hitt told me that he has treated about 75+ patients with Ozone now for Lyme with very good results.&amp;nbsp; It seems to be a newer thing for him, as many of his patients historically have been afflicted with other diseases, especially cancer.&amp;nbsp; John Roulac, the CEO of Nutiva, referred me to Dr. Hitt.&amp;nbsp; John had a very similar case of Lyme Disease as I did.&amp;nbsp; He had great success ("he's 95% better") and highly recommended that I seek treatment at the clinic.&lt;br /&gt;&lt;br /&gt;The IV Amino Acid therapy made a HUGE life-altering difference in my physical and mental condition.&amp;nbsp; My memory rapidly improved, my cognitive function improved and my attention&amp;nbsp;span and mood were greatly improved.&amp;nbsp; The Ozone seemed to really get&amp;nbsp;a handle on the progression of the Lyme Disease.&amp;nbsp; In Dr. Hitt's opinion, there is really nothing out there now that can 100% get rid of&amp;nbsp;CHRONIC long-term&amp;nbsp;Lyme Disease once it has settled into the body and I seem to agree with this based on conversations I have had&amp;nbsp;with other Lyme patients and the research I have read.&amp;nbsp; No doubt, some people do respond to antibiotics, and there are several other alternative treatments that can help (see &lt;a href="http://www.betterhealthguy.com/"&gt;http://www.betterhealthguy.com/&lt;/a&gt; for more information on that).&amp;nbsp; However, Ozone is extremely easy to administer, is fairly cost effective and does not appear to have side effects and is quite safe.&amp;nbsp; I haven't found another treatment option that can say that, except perhaps for Rife Frequencies.&amp;nbsp; Dr. Hitt feels the Ozone gets the Lyme bug under very good control so the immune system can once again regain control and function more normally.&amp;nbsp; The patients I spoke with are doing MUCH, MUCH better and only go back to the clinic periodically for a 2-3 day follow up (every 6 months or so, but that is very individual).&lt;br /&gt;&lt;br /&gt;Working in the medical field and with my own personal experience with Lyme Disease,&amp;nbsp;my feeling is&amp;nbsp;that the long-term use of antibiotics is extremely, extremely dangerous.&amp;nbsp; I certainly would encourage that as a first line of treatment is you are so inclined, as it works for some patients. However, doing years and years of antibiotics WILL create conditions such as Candida, immune system damage, serious bacterial&amp;nbsp;resistance, intestinal damage, among many, many&amp;nbsp;other serious side effects.&amp;nbsp; I lost my gall bladder to IV Rocephin.&amp;nbsp; I have also suffered many of these antibiotic side effects that I am still dealing with to this day.&amp;nbsp; To me, if my Lyme disease wasn't getting under control after 8-12 months of antibiotics, then I figured it was time to really do something else, that was much safer.&amp;nbsp; That is why I chose&amp;nbsp;the Ozone treatments.&lt;br /&gt;&lt;br /&gt;If I had to outline some suggestions for those suffering from Chronic Lyme Disease, these are the ones I would make based on my past experience:&lt;br /&gt;&lt;br /&gt;-&amp;nbsp; Get tested properly, if your routine lab work shows you are negative for Lyme and co-infections, get tested by a specialty Lab such as IgeneX.&amp;nbsp; A negative Lyme test means nothing if you are symptomatic and have been bitten by a tick.&lt;br /&gt;-&amp;nbsp; Get to a Lyme-Literate doctor right away and save yourself the agony of dealing with doctors that do not know how to treatment Lyme Disease, this is the most important item, it could save your life.&amp;nbsp; The longer you deal with doctors that are not truly up-to-date in treating Lyme Disease and are in denial about it's existence, the more precious time you are wasting.&amp;nbsp; Time really is of the essence in dealing with this disease.&lt;br /&gt;-&amp;nbsp; If you don't feel good about your Lyme doctor, ( I did NOT and I later found out from other patients of my Lyme doctor that they were NOT getting any better), the find another!&lt;br /&gt;-&amp;nbsp; Be careful with antibiotics and certain alternative treatments.&amp;nbsp; Do your research and contact other Lyme patients via the Internet&amp;nbsp;or support groups and see what has really worked for them. If you choose antibiotic treatment, make sure you are fully educated on the side effects and what to do to protect your body while on them.&amp;nbsp; Be aware that even many Lyme doctors will tell you that years and years of antibiotics are necessary to control Lyme.&amp;nbsp; Read in between the lines&amp;nbsp;if necessary, as this is a real business for some, but not necessarily in the best interests of the patient.&amp;nbsp; This had been&amp;nbsp;my experience at least.&amp;nbsp; Certainly there are many good dedicated Lyme doctors out there, I am just suggesting that you should spend time finding them.&amp;nbsp; They are not all the same.&lt;br /&gt;-&amp;nbsp; Certain alternative treatments promise a lot and deliver nothing (but spending enormous amounts of money on them).&amp;nbsp; I.E., Salt/Vitamin C protocol among others.&amp;nbsp; I have heard it's worked for some, but&amp;nbsp;such a large amount&amp;nbsp;of sodium being ingested daily long-term can cause serious, irreversible kidney damage and certainly dangerous high blood pressure at the least.&amp;nbsp; The decision is ultimately yours, but do not just go on the advice of one website, etc.&amp;nbsp; And have lab work done regularly to make sure your treatment is not damaging your liver/kidneys.&lt;br /&gt;-&amp;nbsp; Please don't think that certain supplements alone are going to rid you of Chronic Lyme Disease as they will not.&amp;nbsp; They can be a great accompaniment to other treatments but are very unlikely to cure Chronic Lyme Disease on their own.&amp;nbsp; As much good information is out there on the Internet about Lyme Disease, there is much more inaccurate information.&amp;nbsp; Use your common sense to guide you.&lt;br /&gt;&lt;br /&gt;I truly hope this helps.&amp;nbsp; Feel free to email me with questions!&lt;br /&gt;&lt;br /&gt;Greg&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1682812325692043191-6947996330579359542?l=lymeepidemic.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://lymeepidemic.blogspot.com/feeds/6947996330579359542/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://lymeepidemic.blogspot.com/2010/04/specific-lyme-disease-treatment.html#comment-form' title='11 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/6947996330579359542'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/6947996330579359542'/><link rel='alternate' type='text/html' href='http://lymeepidemic.blogspot.com/2010/04/specific-lyme-disease-treatment.html' title='Specific Lyme Disease Treatment Information!  Ozone Treatment for Lyme Disease.'/><author><name>Greg</name><uri>http://www.blogger.com/profile/04810923151486436631</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='21' src='http://3.bp.blogspot.com/_i8dTyVzW4fQ/SsGIU3goXzI/AAAAAAAAAAM/LXXwyFKnFw8/S220/BlogPic'/></author><thr:total>11</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1682812325692043191.post-2503418145503538668</id><published>2010-02-26T20:50:00.000-08:00</published><updated>2010-02-26T20:50:33.124-08:00</updated><title type='text'>Gall Bladder Surgery and the End of Treament!</title><content type='html'>Hi,&lt;br /&gt;&lt;br /&gt;I just had my gall bladder out 1 week ago.&amp;nbsp; As I may have mentioned before, my gall bladder was not working properly as it had been damaged by the IV Rocephin (antibiotic) that I was on in December. So, out it went!&amp;nbsp; And it REALLY hurt.&amp;nbsp; It has taken me this long to feel even somewhat normal.&amp;nbsp; In the meantime, I was still having treatments at the clinic this week!&amp;nbsp; Whew!&amp;nbsp; That was due to the fact that I had developed another infection after the surgery.&amp;nbsp; No so good.&amp;nbsp; Today was my last day of treament at the clinic (yeah!), for now.&amp;nbsp; I will wait and see how I feel the over next few weeks after I more fully recover from the surgery and infection.&amp;nbsp; Then I can better evaluate the treament.&amp;nbsp; But yes, I do feel better!&lt;br /&gt;&lt;br /&gt;I would like to thank John Boswell and Dr. Nick Warner in particular for their support during this most difficult time.&amp;nbsp; John has established the Get A Vision Project:&amp;nbsp; &lt;a href="http://www.getavision.org/"&gt;http://www.getavision.org/&lt;/a&gt;&amp;nbsp;&amp;nbsp; PLEASE take a look - it saved my life!&lt;br /&gt;&lt;br /&gt;John provided the website for my fundraiser. Get A Vision's purpose, in a nutshell,&amp;nbsp;is to help out those who have substantial medical bills and need financial assistance in dealing with their illness.&amp;nbsp; I was the first recipient of the project.&amp;nbsp; John has partnered with Lance Armstrong's organization among others, to provide this much-needed assistance.&lt;br /&gt;&lt;br /&gt;FYI - There is a building on the corner of Sunset and Vine in Hollywood, it's one of the tallest buildings in Hollywood and they've completely redone it and made it into beautiful glitzy condos.&amp;nbsp; John has the penthouse for one night, March 10th to do a big fundraiser for Get A Vision.&amp;nbsp; The celebrities will be out!&lt;br /&gt;&lt;br /&gt;I&amp;nbsp;have been invited to speak that evening about Lyme Disease and my experiences as I was the first recipient for Get A Vision. How exciting! &amp;nbsp; I am going to try to make it.&amp;nbsp; I think it would be a good thing - making something really positive out of all this madness.&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&amp;nbsp; &lt;br /&gt;Greg &lt;br /&gt;:-)&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1682812325692043191-2503418145503538668?l=lymeepidemic.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://lymeepidemic.blogspot.com/feeds/2503418145503538668/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://lymeepidemic.blogspot.com/2010/02/gall-bladder-surgery-and-end-of.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/2503418145503538668'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/2503418145503538668'/><link rel='alternate' type='text/html' href='http://lymeepidemic.blogspot.com/2010/02/gall-bladder-surgery-and-end-of.html' title='Gall Bladder Surgery and the End of Treament!'/><author><name>Greg</name><uri>http://www.blogger.com/profile/04810923151486436631</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='21' src='http://3.bp.blogspot.com/_i8dTyVzW4fQ/SsGIU3goXzI/AAAAAAAAAAM/LXXwyFKnFw8/S220/BlogPic'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1682812325692043191.post-1467844709047979324</id><published>2010-02-13T18:11:00.000-08:00</published><updated>2010-02-13T18:16:04.604-08:00</updated><title type='text'>Nearing the End of My Treatment at the Clinic!</title><content type='html'>Hello,&lt;br /&gt;&lt;br /&gt;Well it's been nearly 5 weeks (hard to believe?!) that I have been at the clinic now.&amp;nbsp; I am nearing the end of my initial treatment.&amp;nbsp; I should be done by this Wednesday.&lt;br /&gt;&lt;br /&gt;I have some exciting news, I am feeling better!&amp;nbsp; The docs are still doing ozone treatment which has helped with the Lyme.&amp;nbsp; Now they are doing IV Amino Acid Therapy.&amp;nbsp; This particular doctor is one of the few in the world doing this.&amp;nbsp; He perfected it many years ago so he has become quite the expert in this area.&amp;nbsp; I am surprised at how many people come from all over the world, including many celebrities, to the clinic for treatment.&amp;nbsp; The IV Amino Acid Therapy restores neurotransmitter function - &lt;span class="Paragraph"&gt;it restores the function of abused neurotransmitter receptors by bathing the damaged nerve cells in a carefully designed intravenous solution of amino acids.&lt;/span&gt;&lt;br /&gt;&lt;span class="Paragraph"&gt;&lt;br /&gt;&lt;/span&gt;&lt;br /&gt;&lt;span class="Paragraph"&gt;I cannot believe how much brain/neurological damage I had from the Lyme Disease.&amp;nbsp; I didn't realize it until I started this therapy.&amp;nbsp; I can now read!&amp;nbsp; I just read a 350-page book.&amp;nbsp; Prior to coming to the clinic there was no way I could do that.&amp;nbsp; And my mood and mind clarity feel like they have been restored!&amp;nbsp; I no longer feel depressed and "numb and dumb."&amp;nbsp; I can laugh again!&lt;/span&gt;&lt;br /&gt;&lt;span class="Paragraph"&gt;&lt;br /&gt;&lt;/span&gt;&lt;br /&gt;&lt;span class="Paragraph"&gt;There have been many challenges for me the past month.&amp;nbsp; Traveling to the clinic every day, wondering if it was going to work; the expense, the worry and the pain... .&amp;nbsp; Plus the fact that the IV Rocephin (an antibiotic) I was on in Nov./Dec. damaged my gallbladder so bad that I now have to have it surgically removed next week!&amp;nbsp; Which brings me to a discussion:&amp;nbsp; As I have mentioned in the past, I personally have realized how dangerous long-term antibiotic therapy can be.&amp;nbsp; Many Lyme patients are not fully aware of how dangerous they can be.&amp;nbsp; Certainly in the case of acute Lyme Disease, one would use antibiotics IMMEDIATELY.&amp;nbsp; However, in the case of Chronic Lyme Disease there ARE other options.&amp;nbsp; There are some patients that do ok on antibiotics and recover.&amp;nbsp; However, it seems the majority of Chronic Lyme Disease patients do not.&amp;nbsp; I have had some lengthy discussions on this topic with the doctor at the clinic.&amp;nbsp; He concurs that the antibiotics, for many (not all) can bring temporary relief but in reality make the disease much, much worse.&amp;nbsp; Ozone seems to be very effective with far less dangers.&amp;nbsp;&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span class="Paragraph"&gt; I have suffered not only gallbladder disease, but serious intestinal permeability ("Leaky Gut") issues due to the use of antibiotics.&amp;nbsp; The long-term use of antibiotics not only creates an environment for Candida, but C. Difficile overgrowth, bacterial strain-resistance and Leaky Gut problems which can be almost as devastating as the Lyme Disease.&amp;nbsp; I think it's very important that Lyme patients are fully educated about this before they make the decision to do years of antibiotics.&amp;nbsp; It is ultimately THEIR choice, but please don't make this decision before you are fully educated about the consequences of long-term use of antibiotics and are fully prepared to take those risks.&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span class="Paragraph"&gt;I have also met some other wonderful Lyme patients at the clinic, ALL with very, very similar horror stories.&amp;nbsp; This disease is clearly an epidemic with no real solution that is being ignored by the majority of the mainstream medical establishment.&amp;nbsp; One patient, Aaron was so helpful to me.&amp;nbsp; We spoke for&amp;nbsp; few days and shared very, very similar stories on the despair and frustration we've experienced battling Lyme Disease.&amp;nbsp; I don't think our meeting was a "coincidence."&amp;nbsp; He works in alternative healthcare and was able to give me some wonderful suggestions.&amp;nbsp; Also, Aaron has had TREMDENOUS results with the ozone treatment.&amp;nbsp;&amp;nbsp; He told me first hand that this is the best he has felt since before getting sick with Lyme!&amp;nbsp; He anticipates coming back to the clinic only periodically for short-term follow up treatments to keep it in "check."&amp;nbsp; I wish him all the best.&amp;nbsp; He mentioned to me that I helped him as well.&amp;nbsp; He said that now he knows he is not going crazy and making all this up!&amp;nbsp; (How many Lyme patients have been told that?)&amp;nbsp; He did not know anyone else with the disease, so meeting me helped him understand that there are indeed others suffering, frequently in silence.&lt;/span&gt;&lt;br /&gt;&lt;span class="Paragraph"&gt;&lt;br /&gt;&lt;/span&gt;&lt;br /&gt;&lt;span class="Paragraph"&gt;I want to thank everyone for their prayers and support during this most difficult time for me.&amp;nbsp; I am hopeful that I will continue to get better and better.&lt;br /&gt;&lt;/span&gt;&lt;br /&gt;&lt;span class="Paragraph"&gt;&lt;br /&gt;&lt;/span&gt;&lt;br /&gt;&lt;span class="Paragraph"&gt;Thanks and I'll keep you posted on my progress!&lt;/span&gt;&lt;br /&gt;&lt;span class="Paragraph"&gt;Greg&lt;/span&gt;&lt;br /&gt;&lt;span class="Paragraph"&gt;:-)&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1682812325692043191-1467844709047979324?l=lymeepidemic.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://lymeepidemic.blogspot.com/feeds/1467844709047979324/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://lymeepidemic.blogspot.com/2010/02/nearing-end-of-my-treatment-at-clinic.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/1467844709047979324'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/1467844709047979324'/><link rel='alternate' type='text/html' href='http://lymeepidemic.blogspot.com/2010/02/nearing-end-of-my-treatment-at-clinic.html' title='Nearing the End of My Treatment at the Clinic!'/><author><name>Greg</name><uri>http://www.blogger.com/profile/04810923151486436631</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='21' src='http://3.bp.blogspot.com/_i8dTyVzW4fQ/SsGIU3goXzI/AAAAAAAAAAM/LXXwyFKnFw8/S220/BlogPic'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1682812325692043191.post-4966121607038750649</id><published>2010-01-17T15:16:00.000-08:00</published><updated>2010-01-17T22:16:10.793-08:00</updated><title type='text'>2nd Week at the Clinic</title><content type='html'>Well I am into my 2nd week being at the Clinic.&amp;nbsp; I've had to face some frightening news from the doctors.&amp;nbsp;&amp;nbsp; The years of antibiotic treatment I have been on have done some very serious damage to my intestines.&amp;nbsp; Very serious.&amp;nbsp; Damage to the lining of my intestines, some possible bleeding, secondary infections, etc.&amp;nbsp; Since the bulk of a person's immune system lies within the intestines, will all the damage, it's no wonder my immune system is not working well.&amp;nbsp; The docs are running some some more tests and anticipate putting together some additional treatment to help heal my intestines and immune system, so it is going to take some more time to heal.&amp;nbsp; I am learning patience, what else can I do?&lt;br /&gt;&lt;br /&gt;I did have some VERY encouraging talks with some of the patients here at the clinic, whom over time, have gotten tremendous results. They all say to be patient and that it took years to get this ill and that I won't get well overnight.&lt;br /&gt;&lt;br /&gt;Thank you to all those who have prayed for me, I have felt an upliftment this week, despite the not-so-good news and I feel positive about my road ahead to wellness.&lt;br /&gt;&lt;br /&gt;Love,&lt;br /&gt;Greg&lt;br /&gt;:-)&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1682812325692043191-4966121607038750649?l=lymeepidemic.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://lymeepidemic.blogspot.com/feeds/4966121607038750649/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://lymeepidemic.blogspot.com/2010/01/2nd-week-at-clinic.html#comment-form' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/4966121607038750649'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/4966121607038750649'/><link rel='alternate' type='text/html' href='http://lymeepidemic.blogspot.com/2010/01/2nd-week-at-clinic.html' title='2nd Week at the Clinic'/><author><name>Greg</name><uri>http://www.blogger.com/profile/04810923151486436631</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='21' src='http://3.bp.blogspot.com/_i8dTyVzW4fQ/SsGIU3goXzI/AAAAAAAAAAM/LXXwyFKnFw8/S220/BlogPic'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1682812325692043191.post-1136310040962388932</id><published>2010-01-09T21:31:00.000-08:00</published><updated>2010-01-09T21:32:08.154-08:00</updated><title type='text'>I Have Started the Lyme Clinic Treatment:</title><content type='html'>Hi,&lt;br /&gt;&lt;br /&gt;I arrived in San Diego this past Thursday.&amp;nbsp; I started treatments at the clinic on Friday.&amp;nbsp; It's a bit too soon to say exactly what is going to happen, but I did have a very powerful reaction after the initial IV treatments and the docs think that is a very good sign.&amp;nbsp; It's a bit strange uprooting yourself for 5 weeks to a new city, a new apartment, new surrounding, etc.&amp;nbsp; But I have faith that with everyone that is praying for me, that this treatment will work to resolve the Lyme Disease.&amp;nbsp; On a bright note, it was 80 degrees here today and I enjoyed some healing time at the beach!&amp;nbsp; Not bad for January?&lt;br /&gt;&lt;br /&gt;Also good news:&amp;nbsp; I have heard from Washington that Rep. Mary Bono Mack does want more feedback from me regarding the new Lyme Bill in the House right now, as I previously mentioned in my last post.&lt;br /&gt;&lt;br /&gt;xxxooo&lt;br /&gt;Greg&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1682812325692043191-1136310040962388932?l=lymeepidemic.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://lymeepidemic.blogspot.com/feeds/1136310040962388932/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://lymeepidemic.blogspot.com/2010/01/i-have-started-lyme-clinic-treatment.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/1136310040962388932'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/1136310040962388932'/><link rel='alternate' type='text/html' href='http://lymeepidemic.blogspot.com/2010/01/i-have-started-lyme-clinic-treatment.html' title='I Have Started the Lyme Clinic Treatment:'/><author><name>Greg</name><uri>http://www.blogger.com/profile/04810923151486436631</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='21' src='http://3.bp.blogspot.com/_i8dTyVzW4fQ/SsGIU3goXzI/AAAAAAAAAAM/LXXwyFKnFw8/S220/BlogPic'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1682812325692043191.post-5407856885452086874</id><published>2009-12-28T11:16:00.000-08:00</published><updated>2009-12-28T11:16:11.487-08:00</updated><title type='text'>The New Year Brings New Hope</title><content type='html'>Merry Christmas and Happy Holidays to All!&lt;br /&gt;&lt;br /&gt;I have been very busy preparing for my month-long visit to the clinic in San Diego.&amp;nbsp; Fortunately, I just found a great room to stay in for the month.&amp;nbsp; As one can imagine, it's not exactly cheap to stay in San Diego.&amp;nbsp; But it all worked out for the best.&amp;nbsp; I am very hopeful that this treatment will heal me from Lyme Disease and restore my health in the new year.&amp;nbsp; I also hope you'll follow my progress in January as I will be blogging more regularly and with greater detail as the treatment progresses.&amp;nbsp; Look for daily/weekly posts on my progress!&lt;br /&gt;&lt;br /&gt;Happy New Year.&lt;br /&gt;&lt;br /&gt;Greg&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1682812325692043191-5407856885452086874?l=lymeepidemic.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://lymeepidemic.blogspot.com/feeds/5407856885452086874/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://lymeepidemic.blogspot.com/2009/12/new-year-brings-new-hope.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/5407856885452086874'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/5407856885452086874'/><link rel='alternate' type='text/html' href='http://lymeepidemic.blogspot.com/2009/12/new-year-brings-new-hope.html' title='The New Year Brings New Hope'/><author><name>Greg</name><uri>http://www.blogger.com/profile/04810923151486436631</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='21' src='http://3.bp.blogspot.com/_i8dTyVzW4fQ/SsGIU3goXzI/AAAAAAAAAAM/LXXwyFKnFw8/S220/BlogPic'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1682812325692043191.post-6283565674082787115</id><published>2009-12-04T14:56:00.000-08:00</published><updated>2009-12-04T14:56:00.264-08:00</updated><title type='text'>December 2009 update - New Lyme Bill in Congress, Screening of "Under Our Skin" and a new encouraging treatment!</title><content type='html'>Hi,&lt;br /&gt;&lt;br /&gt;Here in the desert, we held an Evening of Lyme Disease Education on Sunday November 15, 2009 and it was a success!&amp;nbsp; We had about 20 people show up for a short lecture by myself, and then a much-anticipated free screening of the latest Lyme Disease epidemic documentary (now up for an Acadamy Award!) "Under Our Skin."&amp;nbsp; (&lt;a href="http://www.underourskin.com/"&gt;http://www.underourskin.com/&lt;/a&gt;)&lt;br /&gt;&lt;br /&gt;I feel most people in the audience were shocked at the statistics and facts the film presented regarding Lyme Disease.&amp;nbsp; Some feel that possibly as many as 300,000 new cases of Lyme Disease are appearing in the U.S. annually, FAR surpassing that of HIV.&amp;nbsp; And we still don't have a cure... .&amp;nbsp; And we are still arguing about treatment guidelines... .&lt;br /&gt;&lt;br /&gt;I received an encouraging letter back from Congresswoman Rep. Mary Bono Back regarding my battle with Lyme Disease.&amp;nbsp; (The text has been pasted below.)&amp;nbsp; Evidently there is a new bill before the&amp;nbsp;House&amp;nbsp;regarding Lyme Disease and the need for new treatment guidelines, etc.&amp;nbsp; I would encourage you to read it.&amp;nbsp; I invite those interested parties to work with me in writing to Congress regarding this bill.&amp;nbsp; It can be a dauting task for someone like myself to live with the symptoms of Lyme Disease, work, come up with tens of thousands of dollars for treatment,&amp;nbsp;AND try&amp;nbsp;work with Congress on this issue.&amp;nbsp; Please, I need other Lyme patients and their supporters to help out!&lt;br /&gt;&lt;br /&gt;Even better news:&amp;nbsp; through a good friend of mine here in the desert, I was put in touch with a gentleman who is the CEO of an organic food company in California that also has Lyme Disease.&amp;nbsp; I spoke with him and his case is VERY similar to mine.&amp;nbsp; We both had a disasterous (and dangerous) experience with the same Lyme doc in California we went to for treatment.&amp;nbsp; What a coincidence? &amp;nbsp;He referred me to a clinic that is having success in treating Lyme patients without antibiotics.&amp;nbsp; He feels he is 95% better now as he was at a point where he was quite debilitated by Lyme.&amp;nbsp; He feels well and says he has his life back.&amp;nbsp; &lt;br /&gt;&lt;br /&gt;My experience with antibiotics has been devistating.&amp;nbsp; I have had little to no results and many, many negative side effects to the drugs.&amp;nbsp; While the antibiotics have been holding the meningitis symptoms "at bay" I have made little progress otherwise.&amp;nbsp; As I will discuss in the next post, my position on Lyme disease seems to be rather unique at this point as not only do I feel the Infectious Disease Society's treatment guidelines are totally outdated and ineffective, but I feel the years of antibiotics being prescribed by ILADS while yes, important and helpful to MANY, is riddled with serious and dangerous consequences such as&amp;nbsp;secondary infections, rapily growing bacterial resistance, permanent intestinal and neurological damage, etc.&amp;nbsp; I strongly feel that we need new tests that are as accurate&amp;nbsp; in testing for tick-borne illnesses as HIV tests are now accurate for testing of HIV.&amp;nbsp; In addition, we desparately need new funding and research into new drugs and healthy alternative treatments to cure Lyme Disease.&lt;br /&gt;&lt;br /&gt;I will be going to the clinic for one month in January for treatment in hopes that I can&amp;nbsp;regain my health and life back and treat the Lyme Disease. I hope to have good news in a couple of months!&amp;nbsp; I look forward to your continued support.&lt;br /&gt;&lt;br /&gt;Happy Holidays,&lt;br /&gt;&lt;br /&gt;Greg&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;Letter From Rep. Mary Bono Mack:&lt;br /&gt;&lt;br /&gt;&lt;em&gt;Dear Greg:&lt;/em&gt;&lt;br /&gt;&lt;em&gt;&lt;br /&gt;&lt;/em&gt;&lt;br /&gt;&lt;em&gt;Thank you for contacting me with your concerns regarding increased funding for Lyme Disease research. It is good to hear from you and I appreciate your patience while awaiting a response.&lt;br /&gt;&lt;/em&gt;&lt;br /&gt;&lt;em&gt;First, I am hopeful the dialogue and presentations started at&amp;nbsp;the Medical Center&lt;/em&gt; [where Mary spoke]&lt;em&gt;recently are the start of an ongoing discussion for specific health care needs that stand to make a real difference in the lives of patients across the country.&lt;/em&gt; &lt;br /&gt;&lt;em&gt;&lt;br /&gt;&lt;/em&gt;&lt;br /&gt;&lt;em&gt;Second, as you may know, the primary research for Lyme Disease is centered at the National Institute of Health (NIH), and specifically the National Institute of Allergy and Infectious Diseases. I have consistently supported important research funds at the NIH in Congressional appropriations measures where we know that the funding increases are ones we can afford given the current budget deficit our country faces. &lt;/em&gt;&lt;br /&gt;&lt;em&gt;&lt;br /&gt;&lt;/em&gt;&lt;br /&gt;&lt;em&gt;There are targeted legislative approaches that have been considered in recent years, and one in particular that I would like to bring to your attention, as it does have merit.&lt;br /&gt;&lt;/em&gt;&lt;br /&gt;&lt;em&gt;The Lyme and Tick-Borne Diseases Prevention, Education, and Research Act of 2009, H.R. 1179 was introduced earlier this year by Representative Christopher Smith on February 25, 2009. This Act requires the Secretary, acting through the appropriate federal officials, to provide for the coordination of all federal programs and activities related to Lyme and other tick-borne diseases and the conduct or support of specified activities, including: (1) developing sensitive and accurate diagnostic tools and tests, (2) improving the efficient utilization of diagnostic testing currently available; (3) accurately determining the prevalence of such diseases; (4) evaluating the feasibility of creating a national uniform reporting system; (5) providing and promoting access to a clearinghouse of information on such diseases; (6) increasing public education related to such diseases; (7) creating a physician education program; (8) establishing epidemiological research objectives to determine the long term course of illness for Lyme disease; and (9) determining the effectiveness of different treatment modalities by establishing treatment outcome objectives.&lt;br /&gt;&lt;/em&gt;&lt;br /&gt;&lt;em&gt;At this time, H.R. 1179 has been referred to the House Committee on Energy and Commerce. Please rest assured that I will keep your concerns in mind when this legislation comes to the House Floor for debate. It is also important that you continue to weigh-in with your thoughts on this matter as it will help me to better understand what related policies will bring about significant changes to the way in which this disease is addressed. &lt;br /&gt;&lt;/em&gt;&lt;br /&gt;&lt;em&gt;Again, thank you for taking the time to write. For your convenience, you can sign up to receive regular email updates from me on issues important to the 45th District at www.bonomack.house.gov/emailsignup. Please feel free to contact me on other matters of mutual concern.&lt;br /&gt;&lt;/em&gt;&lt;br /&gt;&lt;em&gt;Sincerely,&lt;br /&gt;&lt;/em&gt;&lt;br /&gt;&lt;em&gt;MARY BONO MACK&lt;br /&gt;&lt;/em&gt;&lt;br /&gt;&lt;em&gt;Member of Congress&lt;/em&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1682812325692043191-6283565674082787115?l=lymeepidemic.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://lymeepidemic.blogspot.com/feeds/6283565674082787115/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://lymeepidemic.blogspot.com/2009/12/december-2009-update-new-lyme-bill-in.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/6283565674082787115'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/6283565674082787115'/><link rel='alternate' type='text/html' href='http://lymeepidemic.blogspot.com/2009/12/december-2009-update-new-lyme-bill-in.html' title='December 2009 update - New Lyme Bill in Congress, Screening of &quot;Under Our Skin&quot; and a new encouraging treatment!'/><author><name>Greg</name><uri>http://www.blogger.com/profile/04810923151486436631</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='21' src='http://3.bp.blogspot.com/_i8dTyVzW4fQ/SsGIU3goXzI/AAAAAAAAAAM/LXXwyFKnFw8/S220/BlogPic'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1682812325692043191.post-1813351485777737838</id><published>2009-11-09T20:39:00.000-08:00</published><updated>2009-12-04T14:57:10.805-08:00</updated><title type='text'></title><content type='html'>Today I heard that I may have an appointment with the Lyme Doc back East in early January, but it's not official yet. So let's hope so...The clock is ticking and this disease is rapidly progressing to the point of being nearly unbearable.&lt;br /&gt;&lt;br /&gt;This Sunday evening, November 15&lt;span class="blsp-spelling-error" id="SPELLING_ERROR_0"&gt;th&lt;/span&gt; at 6pm &lt;span class="blsp-spelling-error" id="SPELLING_ERROR_1"&gt;LymeAid&lt;/span&gt; will be hosting an evening of Lyme Disease Education in Palm Springs at the Desert Oasis Chapel. We will be screening the latest Lyme Disease documentary &lt;span style="font-style: italic;"&gt;Under Our Skin&lt;/span&gt;, free of charge, to help educate the public on Lyme Disease. Myself along with another Lyme sufferer will be discussing our personal experiences (nightmares?) with Lyme Disease. Also, I think it's time to write Senator's Barbara Boxer and Diane &lt;span class="blsp-spelling-error" id="SPELLING_ERROR_3"&gt;Feinstein about all of this&lt;/span&gt;... . Any suggestions?&lt;br /&gt;&lt;br /&gt;I'd love to hear from my readers. Any &lt;span style="font-weight: bold;"&gt;positive&lt;/span&gt; thoughts and suggestions are most welcome!&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1682812325692043191-1813351485777737838?l=lymeepidemic.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://lymeepidemic.blogspot.com/feeds/1813351485777737838/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://lymeepidemic.blogspot.com/2009/11/today-i-heard-that-i-may-have.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/1813351485777737838'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/1813351485777737838'/><link rel='alternate' type='text/html' href='http://lymeepidemic.blogspot.com/2009/11/today-i-heard-that-i-may-have.html' title=''/><author><name>Greg</name><uri>http://www.blogger.com/profile/04810923151486436631</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='21' src='http://3.bp.blogspot.com/_i8dTyVzW4fQ/SsGIU3goXzI/AAAAAAAAAAM/LXXwyFKnFw8/S220/BlogPic'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1682812325692043191.post-5754279563851359245</id><published>2009-10-12T20:58:00.000-07:00</published><updated>2009-10-21T14:18:07.376-07:00</updated><title type='text'>Website and Fundraiser Announced Today!</title><content type='html'>Hi,&lt;br /&gt;&lt;br /&gt;Today, my Fundraiser and &lt;span class="blsp-spelling-error" id="SPELLING_ERROR_0"&gt;&lt;span class="blsp-spelling-error" id="SPELLING_ERROR_0"&gt;LymeAid&lt;/span&gt;&lt;/span&gt; website were announced to many of you via Dr. Nick's email.  We are hopeful that the fundraiser will be successful.  I am STILL on a waiting list to see one of the top Lyme doc's in the U.S, but I am still several months away from an actual appointment.&lt;br /&gt;&lt;br /&gt;My insurance company has paid minimal amounts of my medical claims, leaving with me with thousands of dollars in medical bills over the years.  Because I am having to seek medical treatment out of network (because there are NO doctors within my network who treat Chronic Lyme Disease), evidently my insurance company is taking that as a green light to go ahead and deny my claims!  I do have out of network coverage, but the way they get around covering my treatment is that they state my claims "are is excess of reasonable and customary charges."&lt;br /&gt;&lt;br /&gt;Dr. Nick mentioned to me today that he has become acquainted with another person here in the &lt;span class="blsp-spelling-error" id="SPELLING_ERROR_1"&gt;&lt;span class="blsp-spelling-error" id="SPELLING_ERROR_1"&gt;Coachella&lt;/span&gt;&lt;/span&gt; Valley who has had a very, very similar experience (or should I say, nightmare) with Lyme Disease as myself.  Evidently this gentlemen has been devastated by Lyme but has made a good comeback with a variety of treatments.  Although he told Dr. Nick that the Lyme bug still crops up now and then and makes him ill.  I am quite anxious to speak with him as to find out what has and has not worked worked for him, therapy-wise.  Meanwhile I am still trudging along, trying to maintain hope and balance in my life.  I invite and encourage other Lyme patients to share positive comments on this blog about their Lyme therapies.&lt;br /&gt;&lt;br /&gt;Next post, I'll describe my so far limited experiences with contacting our Legislators on increasing funding for Lyme Disease Research and Treatment and my letter to Rep. Mary &lt;span class="blsp-spelling-error" id="SPELLING_ERROR_2"&gt;&lt;span class="blsp-spelling-error" id="SPELLING_ERROR_2"&gt;Bono&lt;/span&gt;&lt;/span&gt; Mack.  Until then, safe hiking.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1682812325692043191-5754279563851359245?l=lymeepidemic.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://lymeepidemic.blogspot.com/feeds/5754279563851359245/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://lymeepidemic.blogspot.com/2009/10/website-and-fundraiser-announced-today.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/5754279563851359245'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/5754279563851359245'/><link rel='alternate' type='text/html' href='http://lymeepidemic.blogspot.com/2009/10/website-and-fundraiser-announced-today.html' title='Website and Fundraiser Announced Today!'/><author><name>Greg</name><uri>http://www.blogger.com/profile/04810923151486436631</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='21' src='http://3.bp.blogspot.com/_i8dTyVzW4fQ/SsGIU3goXzI/AAAAAAAAAAM/LXXwyFKnFw8/S220/BlogPic'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1682812325692043191.post-4762427260924660619</id><published>2009-09-28T21:14:00.000-07:00</published><updated>2010-02-13T20:06:42.657-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='Welcome'/><title type='text'></title><content type='html'>Hi,&lt;br /&gt;&lt;br /&gt;I'm Greg and welcome to my blog about the current Lyme Disease Epidemic in the U.S.  If you haven't already, please visit: &lt;a href="http://getavision.org/greg-kole/"&gt;http://getavision.org/greg-kole/&lt;/a&gt;&lt;br /&gt;to first read my story about my experience with Lyme Disease and get acquainted as to why I am developing this blog in the first place.  And then please also visit :&amp;nbsp;&lt;a href="http://getavision.org/lymeaid/"&gt;http://getavision.org/lymeaid/&lt;/a&gt;&lt;br /&gt;for more information and links on Lyme Disease.&lt;br /&gt;&lt;br /&gt;Now that you've ready my story, let's begin!  This project, known as LymeAid initially started because a good friend of mine, Dr. Nick Warner, wanted to do a fundraiser for me so I could seek medical treatment for Lyme Disease.  Dr. Nick first hand saw my physical and mental decline due to this terribly debilitating disease and was aware that my insurance company was not fully reimbursing me for my out of network expenses for my medical treatments.  I spent over 1 1/2 years visiting various doctors in the Southern California area before I saw a specialist who finally diagnosed me with Lyme Disease and some other tick-borne illnesses.  But clearly by that point, it was too late.  Lyme Disease has to be caught and treated IMMEDIATELY upon getting bit by a tick.  This is extremely important.  I knew very little about Lyme Disease up until about 6 months ago when I started to do extensive research on it.  No doubt, many of my readers are not that familiar with the intricacies of Lyme.  I sure didn't...&lt;br /&gt;&lt;br /&gt;Flash back to the fall of 2007 after I was bit by a tick in Provincetown, MA, I suddenly developed horrible acute symptoms:  flu-like symptoms, fever, chills, night sweats, severe headaches, stiff neck, bad joint pain (my joints actually locked up on me for hours at a time initially), weight loss, short term memory loss, numbness and tingling in my extremities and crippling fatigue.  Having been a hiker for many years, I knew a little about Lyme.  Some immediate research and putting  2 and 2 together revealed that I had classic Lyme symptoms and most likely had contracted some tick-borne illnesses from the tick bite.  For 1 1/2 years many of the doctors I went to denied that I had Lyme disease, despite the fact that they knew little or nothing about Lyme (it is not that prevalent in the part of Southern California that I live in).   After being checked for nearly every other disease under the sun (RA, Lupus, MS, a variety of other auto-immune diseases, other possible infections), it was very clear to me that I had Lyme Disease.  The problem was that I had wasted over 1 1/2 years of crucial time that should have been spent treating the disease.   It is my sincere desire and hope that no one else has to go through what I have gone through, as I believe there should be a better way to diagnose and treat Lyme Disease.&lt;br /&gt;&lt;br /&gt;The point I am trying to emphasize here is that Lyme Disease is not widely known among many of the medical community, especially outside of the Northeast U.S.   My research has shown that Lyme Disease has become a silent epidemic in parts of the U.S.  In light of the fact that so many people travel nationwide, I feel it is imperative that the medical community across the entire nation become more educated about Lyme so they can quickly and efficiently diagnose and treat Lyme regardless of where the patient lives.  It is my hope that this blog and my website:&amp;nbsp;&lt;span style="text-decoration: underline;"&gt; &lt;/span&gt;&lt;a href="http://getavision.org/greg-kole/"&gt;http://getavision.org/greg-kole/&lt;/a&gt;&lt;br /&gt;will increase national awareness from our legislators and the medical community to increase funding for proper UNBIASED research into curing Lyme Disease.  Because today, we are no where near that goal.&lt;br /&gt;&lt;br /&gt;My next blog will detail my progress to date and some insurance company nightmare stories...Until then, hike safe!&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1682812325692043191-4762427260924660619?l=lymeepidemic.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://lymeepidemic.blogspot.com/feeds/4762427260924660619/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://lymeepidemic.blogspot.com/2009/09/hi-im-greg-and-welcome-to-my-blog-about.html#comment-form' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/4762427260924660619'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1682812325692043191/posts/default/4762427260924660619'/><link rel='alternate' type='text/html' href='http://lymeepidemic.blogspot.com/2009/09/hi-im-greg-and-welcome-to-my-blog-about.html' title=''/><author><name>Greg</name><uri>http://www.blogger.com/profile/04810923151486436631</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='21' src='http://3.bp.blogspot.com/_i8dTyVzW4fQ/SsGIU3goXzI/AAAAAAAAAAM/LXXwyFKnFw8/S220/BlogPic'/></author><thr:total>0</thr:total></entry></feed>
